Jack's EEG

We went last week for Jack's EEG. It went really well. We should get results this week. Here are some of the pictures we took.

The night before when we had to keep him up, we went to Chuck-E-Cheese. It was Jack's first time there. My mom, aunt and cousin went with us. We had a blast! Here is Jack with his Aunt Jackie.

It was so exciting there he could not even sit to eat his dinner...

He really liked Chuck-E-Cheese

We played some games

Went on some rides

We had so much fun and cousin Andrew won over 1,000 tickets! woohoo!

We danced in the camera that projected it onto the TV screens

Even though we kept him up late, he got up twice in the middle of the night. Then we had to get him up early. Mom's job was to keep him awake on the ride to Texas Children's Hospital. Look at how tired baby was....

This is while they were putting on the wires. He was "fake crying" and every time mom pulled out the camera, he would stop crying. It was so funny! We made a game out of it!

And of course when they were all in place he wanted to crawl around

Overall it went really well. 5 minutes after the tech turned off the light Jack rolled up against me and we both fell asleep. I will post when we get results, but I have a good feeling! I want to thank all of our family and friends again for how wonderful and supportive you have been. Jack has no idea how many people love him! He is so blessed! 

They say God has a reason for everything and he sure does. I started my inservice the week of Jack's EEG. My Principal and all the staff have been amazing. The things they have written to me (some of them before they even met me) made me cry. They already love Jack and think of us as part of their family. I feel SO blessed to be a part of this new family.

Worst Day of Our Lives

On Monday I was at my mom's house alone with Jack having a totally normal day. After his morning nap he woke up and ate lunch as usual and then we went up front while I worked on something and he sat in his bouncy chair playing with a book. One minute I looked at him and he was fine then I heard this weird crying noise. I looked at him and I could tell something was not right. 

I picked him up and the crying/moaning noise continued and he was very limp, letting his head fall back. I called my mom and changed his diaper and thought maybe he just needed to have a bottle. The 10 feet from where I changed him to the rocking chair somthing changed in him and I knew something bad was happening. I called his Dr. and attempted to feed him a bottle. It was while I was on the phone with him that he had his seizure. I did not know he was having one though. Apparently there are two kinds, one where the person or child is thrashing quickly and one that is almost in slow motion. Jack's was in slow motion.

At this point I was hysterical and the nurse was telling me to have someone drive me to the hospital. I called my sister-in-law, Khala who lives around the corner and I don't even know if she knew why she was coming over. I loaded Jack and as much things as I could think of in the car while khala came over. Jack was like a rag doll in my arms.

The very worst moment in my life was the 15 minute drive to the hospital. Remember, I didn't know he had a seizure all I knew was that he was acting weird and eyes rolling in the back of his head. While Khala drove like a mad woman, Jack seemed to be going in and out of conscience. I was hysterical. Shaking him and yelling at him. He would not stay awake or alert. I thought the worst. I can not describe those 15 minutes. All I wanted was for that baby to keep looking at me and he couldn't. 

Come to find out after a seizure your brain is EXHAUSTED. NOW if it ever happened again I would let him sleep. He had a CAT scan and that was normal. There are no answers yet but we have an EEG scheduled for next Wednesday and that should at least tell me if he will be prone to more. 

He is acting totally fine now but I will say mommy and daddy are still super worried. I still don't think it has hit me yet. I was hysterical until the moment I walked in that hospital. Then mommy mode hit me. I still can't believe that my son had a seizure and those horrible 15 minutes.

Here is Jack and I asleep at the hospital. They had just tried 5 times to get blood and the only way to calm him down was for me to lay and sing to him. 

This was Jack on a stretcher in the ambulance on the way to Texas Children's Hospital. I think he thought the ambulance was cool!

Waiting and waiting and waiting at Texas Children's Hospital.....

The ceiling tiles in the ER rooms are painted by children. After about 2 hours of waiting Kenny noticed that one of them was painted by a SEAS student that I taught a couple years ago. Sign? I think so!

Jack and Daddy sleeping at TCH.